Cystic fibrosis, or CF, is a degenerative disorder. Its name derives from the fibrous scar tissue that develops in the principal organs and systems affected, such as the lung, or the digestive system. Here you will find a listing of web sites containing medical information and support resources for cystic fibrosis.
Recommended Resources
A non-profit organization with a mandate to eliminate the threat of Cystic Fibrosis; complete with support group information.
http://www.esiason.org/
Provides information and support resources for people of all ages diagnosed with Cystic Fibrosis; complete with assistance program details for family.
http://www.cfvoice.com/
Chicago Cystic Fibrosis Awareness Day
Provides information about the annual conference which helps to raise awareness of Cystic Fibrosis; complete with disease and support group details.
http://www.chicagocfawareness.org/
The Cystic Fibrosis Foundation is a non-profit organization working to assure the development of the means to cure and control cystic fibrosis.
http://www.cff.org/
Cystic Fibrosis Gene Therapy Consortium
The Cystic Fibrosis Gene Therapy Consortium is a non-profit organisation which provides research information for cystic fibrosis patients in the United Kingdom and their families.
http://www.cfgenetherapy.org.uk/
Web site provides free information to professionals involved with, and the patients in receipt of the treatment for cystic fibrosis; complete with a searchable database of abstracts.
http://www.cysticfibrosismedicine.com/
CFRI, the Cystic Fibrosis Research Institute, is a non-profit organization which provides funding for research into the degenerative disease.
http://www.cfri.org
A non-profit organisation in the United Kingdom which funds research into the disease; complete with educational information and support for patients and families.
https://www.cysticfibrosis.org.uk/
Displays conversations between those concerned with cystic fibrosis with sections devoted to teenagers, parents and care givers, and other support topics.
https://www.cysticfibrosis.org.uk/forum/
CFWW, the Cystic Fibrosis Worldwide, is a non-profit organization with a mandate providing information related to Cystic Fibrosis research and support groups to patients.
http://www.cfww.org
Daily Strength: Cystic Fibrosis Forum
Online community of people with cystic fibrosis discuss living and thriving with the condition.
http://www.dailystrength.org/c/Cystic-Fibrosis/forum
North American Cystic Fibrosis Conference
NACFC, the Annual North American Cystic Fibrosis Conference, is a conference held annually to raise awareness of the disease.
http://www.nacfconference.org
Facilitates candid and open communication between adults with Cystic Fibrosis, supports the development of a community of adults with CF and provides education and insight for families, caregivers, and medical professionals.
http://www.thebreathingroom.org/
